This is Jamil and his first time in front of a camera
My son Jamil who is 3 years old suffers from a rare orphaned genetic disease called Bassen Kornzweig Syndrome. He is dying and needs help so he can live. Please visit www.bassenkornzweigfoundation.org so you can find out more on ways to help.
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We are a not for profit foundation called A Cure for Bassen Kornzweig Foundation. We help any and all children improve their quality of life through community outreach, support, play groups, therapy, research, and awareness of any disease or condition that hinders their life.
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